Northland Mischief
The joys and challenges of single parenting and raising a child who has Down Syndrome in Alaska.
Saturday, October 20, 2012
Standing Tall
Aily still has issues with crawling, but we are starting to practice standing. One of the things that we do to strengthen and build her muscles is to have her sit in a kneeling position, since she is there anyways I guess it's as good a time as any to teach her to say her prayers. But in the meantime, it is so good to see her standing tall.
Publishing issues
The last couple of days I've been having publishing issues, hence the torrent of posts today.
Anti-crawling
No, it's not me who's against it, it's Aily. She thinks that crawling exercises are the most horrible thing ever. It's become a daily battle, I try to make sure that there is always something rewarding afterward, but my word the hassle.
Thursday, October 18, 2012
Letters of Love and Learning
My two sisters, Shelli and Charlie, both have 13 year old kids, I have a 14 year old who lives with my mom and a 12 year old who will be 13 in a little over 4 months. Probably needless to say we four, myself, my mom, and my sisters, get more of the current generations grammatically nightmarish, and definition defunct conversations than we can stand any longer. During a recent talk with my sister Charlie which mostly consisted of complaining to one another about the conversational capacity of our children and their insistent misuse of the word 'random'. I proposed that the pre-teens and teens start being made to write real letters to each other, everyone but the kids themselves loved the idea, this should be an interesting endeavor.
Monday, October 15, 2012
Overwhelming?
Sometimes looking ahead is overwhelming. I'm a pretty laid back person,, so sometimes I wonder if I really have what it is going to take to be the advocate I need to be for Aily. I'm stubborn as a mule, sure, but mules pull, they don't push. I have never had to push my oldest girl, she's been ready for anything from day one and dragging me behind all the way. My middle girl is perfectly content to take her own sweet time at things...it's just that her sweet time runs a little faster than normal time and she is consistently far ahead of her peers, and my readiness. I have no experience on pushing, so I guess I will just have to pull.
When Brianne, my oldest girl, started kindergarten she had never had daycare or preschool, the fact of which I made sure her teacher was aware. She was smart and knew all the basics, but her social skills were not quite on par as she hadn't been around many kids her own age. She kept getting in trouble with her teacher. Everyday her teacher had some new complaint, finally a meeting was called by the principal. It was Brianne's father and I, her teacher, the principal and vice principal, the school counselor, and the district head counselor. It was a very long, and at times very heated meeting. I didn't know anything about laws regarding public education or any of that stuff, but I knew my girl. I knew how smart she was, I knew how fast she could learn things, and I knew if they'd give her a chance she would do well. Her teacher was angry, at her wits end and did not want Brianne in her class; her father was offended and angry, and taking it as a personal; the principal, vice principal, and school counselor didn't seem to know what to think. Finally the district counselor gave her opinion, and it became clear that she had final say over the schools employees, Brianne would remain where she was, all she needed was to be given time to acclimate and develop her social skills. I nearly jumped for joy
I know that when it is time for Aily to start school there will be a lot to work out, and when that time comes I am determined that I will be prepared. Until then it is all I can do to push her to keep developing the skills she will need to succeed.
When Brianne, my oldest girl, started kindergarten she had never had daycare or preschool, the fact of which I made sure her teacher was aware. She was smart and knew all the basics, but her social skills were not quite on par as she hadn't been around many kids her own age. She kept getting in trouble with her teacher. Everyday her teacher had some new complaint, finally a meeting was called by the principal. It was Brianne's father and I, her teacher, the principal and vice principal, the school counselor, and the district head counselor. It was a very long, and at times very heated meeting. I didn't know anything about laws regarding public education or any of that stuff, but I knew my girl. I knew how smart she was, I knew how fast she could learn things, and I knew if they'd give her a chance she would do well. Her teacher was angry, at her wits end and did not want Brianne in her class; her father was offended and angry, and taking it as a personal; the principal, vice principal, and school counselor didn't seem to know what to think. Finally the district counselor gave her opinion, and it became clear that she had final say over the schools employees, Brianne would remain where she was, all she needed was to be given time to acclimate and develop her social skills. I nearly jumped for joy
I know that when it is time for Aily to start school there will be a lot to work out, and when that time comes I am determined that I will be prepared. Until then it is all I can do to push her to keep developing the skills she will need to succeed.
Saturday, October 13, 2012
31 for 21 derailment
Well my good intentions got derailed this week between being sick, trying to get things set up so we can move, and my oldest girl's first middle school orchestra concert. I will try to do better in the up coming week.
Thursday, October 11, 2012
Percentiles
My younger two children are tiny. 4yr old Victoria is in the 2nd percentile on the WIC formulated height-for-age chart, and the 10th percentile in the weight-for-age chart; she is my most neurotypical child, a little advanced is all. Aily, who is 21mo doesn't score a percentile on the standard, for age, WHO charts, but on the height-to-weigh WHO charts she scores in the 50th. Aily's doesn't rank on the charts for girls with Down Syndrome either, which makes them pretty much as useless as the standard charts.
My oldest two are above 50th percentile weight and height wise though they've both pretty much hit the BMI age instead of charting; Brianne is 12, and Keegan is 14.
The girl's grandmother's are 59 inches, three inches above being considered in the height range of dwarfism, both of their grandfathers are above average height. Oh their dad, my ex, is short too, 5'6" on a good day. Mostly in my family we are short, I'm the tallest girl, at least until my nieces Sam and Angel outgrow me. Brianne is only expected to reach my 5' 4".
In light of all of this, when they told me that because Aily has Down Syndrome she will probably be below average height, 'oh good, she'll fit right in then'.
What does it matter? Aily wore newborn clothes for months and is only in 9mo clothes now. Brianne never wore newborn clothes and was in 9mo clothes by the time she hit 3mo, she's in juniors size 2 now. I have my pixie girls and my tomboys, it doesn't change how much I love all my children. Aily might have to wait longer to ride the rides, but considering she has a conniption if I even try to play on the park with her, I don't think that's such a big deal, just means I have some one to wait with while my thrill seekers have their go.
My oldest two are above 50th percentile weight and height wise though they've both pretty much hit the BMI age instead of charting; Brianne is 12, and Keegan is 14.
The girl's grandmother's are 59 inches, three inches above being considered in the height range of dwarfism, both of their grandfathers are above average height. Oh their dad, my ex, is short too, 5'6" on a good day. Mostly in my family we are short, I'm the tallest girl, at least until my nieces Sam and Angel outgrow me. Brianne is only expected to reach my 5' 4".
In light of all of this, when they told me that because Aily has Down Syndrome she will probably be below average height, 'oh good, she'll fit right in then'.
What does it matter? Aily wore newborn clothes for months and is only in 9mo clothes now. Brianne never wore newborn clothes and was in 9mo clothes by the time she hit 3mo, she's in juniors size 2 now. I have my pixie girls and my tomboys, it doesn't change how much I love all my children. Aily might have to wait longer to ride the rides, but considering she has a conniption if I even try to play on the park with her, I don't think that's such a big deal, just means I have some one to wait with while my thrill seekers have their go.
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